Hi! My name is Fenyx. I’m 36 years old, happily married, and incredibly blessed. For the past 15 years, however, I have lived with an illness known as Myalgic Encephalomyelitis, or M.E. While I did a pretty good job trying to ignore it for the first seven or eight years, over the past several years my symptoms have worsened. They recently took a nosedive, and I decided I wanted to document this journey. My hope is that this website will give the world a glimpse of what it’s like to live with M.E. My standard is reality. I want to show everything – including the gritty details none of us like to talk about with friends or family who don’t already know. I want the world to know what goes through our heads each and every day. I will make every effort to create short posts as frequently as possible, but please understand that the very nature of this illness makes writing each post an excruciatingly long and painful process, and I may not always be able to do so.
This website will be frank. It will be upfront and honest. It may be disturbing to some, but for others like me we have no choice but to live this life every single day. To those who visit, I would say welcome. Welcome to the world of M.E. The world I and others like me abide in. Please feel free to comment. I appreciate all appropriate comments. While people’s kind words mean the world to me, I cannot guarantee I will answer every comment. The illness itself sometimes makes that impossible. If you have questions, feel free to post them. I will make every attempt to answer them when I can. That said, please use google before asking questions. I’m not kidding when I say I have very limited energy each day. Please be considerate enough to search for answers on your own before asking me your questions. For general information on M.E., I highly recommend the website A Hummingbird’s Guide. There is more information there than most people could read in a month – all of it backed by loads of research and personal experiences.
That said, thank you for visiting my site! I hope you enjoy your stay and walk away knowing just a little bit more about this illness than you did before you came. Take care.
Most important page on this site: ME vs. CFS – They’re Not The Same!
One thought on “About Me”
I have diabetes and when I recieved the diagnosis I thought ‘this is it then’. And then my Grandma met a lady with M.E called Lorraine. I then started to realise how lucky I was as I can live a normal life apart from a little 4mm needle 4 times a day. And now I fully respect those worse of than myself.
Thank you for taking time and energy to create this website as I would find it useful to read.