One of the positives that has come out of having a chronic illness is the number of amazing people I've met through networking with other ill individuals. I've learned so many things from the sick community! One of these things is that people have different ways of facing up to the reality of being ill. … Continue reading Hope and Facing Reality
Is ME fatal? A different perspective.
As someone currently receiving hospice care due solely to the effects of ME, it irks me when people claim ME is not a fatal disease. Many, many ME-related deaths have shown that, at the very least, this disease can be fatal. I've seen people throw around a statistic which claims the death rate for this … Continue reading Is ME fatal? A different perspective.
Just a quick note to the awesome people I've already met who read my blog: I'm still here! I have another post in the works, but a lot has been happening and I'm flaring too badly to finish it right now. I promise to do so as soon as I'm able! Thank you for being … Continue reading Still here…
Fear Of Giving In
As someone who struggles with severe, progressive ME, one of the issues I struggle with most is giving in to new lows as the illness progresses. Over the years, I've learned this illness is relentless. It will continue to worsen no matter what I do. Sure, I can speed up or slow down the progression … Continue reading Fear Of Giving In
Is ME Fatigue?
Fatigue. It is hands down the one single word people most often associate with ME. But should it be? Is it even a defining feature? No! As with any other neurological illness, people with ME experience a wide range of severe symptoms. These include but are not limited to: severe Central Nervous System damage, brain … Continue reading Is ME Fatigue?
What Is Hospice, And How Does It Help?
I mentioned in an earlier post that I currently receive hospice care. As a severe ME patient, I know how lucky that makes me. I know the vast majority of people who have this condition like I do are left stranded with no care at all. I've been there myself, and it's a terrible place. … Continue reading What Is Hospice, And How Does It Help?
ME vs. CFS – They’re Not The Same!
Heads up, folks! This is probably the most important post I will ever write. It's certainly one I feel very passionate about. It's also a bit daunting, because I really want to get it right, to write this post in such a way that people will understand the truth in what I'm saying and pass … Continue reading ME vs. CFS – They’re Not The Same!
Outside The Illness
While this blog is primarily focused on my life with Myalgic Encephalomyelitis, I'd like to start things out by saying, "I am not my illness." It would be easy to get lost in an overwhelmingly controlling, isolating illness such as this. To allow it to define me, to become all that I think and talk … Continue reading Outside The Illness
A Fresh Start
Hello! Welcome to my blog. I recently decided to create a fresh start here. I had initially planned to post primarily video logs (vlogs) here in order to show the progression of my illness. However, I have found that the energy required to record a video, upload that video, and post it here is more … Continue reading A Fresh Start