Big Changes

I'm going through some big changes here, and not necessarily good ones. My initial version of this post was looking quite different, but things haven't played out the way they were supposed to, and to be honest, I'm in a bit of a mess. Here's the deal: Medicare recently made some nasty changes. Because of … Continue reading Big Changes

Advice For Nurses Working With Severe ME Patients

The experience of having regular visits from hospice nurses has been a wonderful one, for the most part. The nurses who visit me are skilled, compassionate, intelligent, kind, caring, and just plain good at what they do. Considering I am their first ME patient ever, things have gone extremely well. Several individuals at hospice have … Continue reading Advice For Nurses Working With Severe ME Patients