For those who’d like to learn more about the disease Myalgic Encephalomyelitis, I’ve compiled a list of some of the best resources available. These resources explain what M.E. is, how it differs from CFS, how to properly diagnose M.E., how M.E. patients can best manage their symptoms, what to do if you’re one of the unfortunate individuals stuck with a diagnosis of CFS, and more.
To learn about M.E., check out the following resources:
The Hummingbird Foundation website, complete with loads of references at the bottom of nearly every page: http://hfme.org
A recent interview by Dr. Byron Hyde, posted in segments here: http://www.youtube.com/playlist?list=PLsQ0FZQ_5JXQO6uxsRFXSiaMw_pwNZCGf
The most important post I’ve ever written: https://documentingme.net/2014/01/31/me-vs-cfs-theyre-not-the-same
An analogy I wrote in response to frequently touted belief that the M.E. vs CFS topic is just a silly name war: https://documentingme.net/2015/08/08/me-vs-cfs-whats-up-with-the-name-war
A paper released last May by Dr. Hyde depicting just one of the regularly found abnormalities in ME patients, and comparing that to polio (this link is to a PDF file that will download automatically): http://www.me-foreningen.info/wp-content/uploads/2017/05/What-is-Myalgic-Encephalom-2017-4-16.pdf
The book “Myalgic Encephalomyelitis and Postviral Fatigue States,” by Dr. Melvin Ramsay, which provides accounts of some of the earliest documented cases of ME, and a solid definition of the disease as it was known when the name Myalgic Encephalomyelitis was created to represent it, by a doctor who was at the forefront of researching and treating the disease at that time.
The book “Missed Diagnosis – Myalgic Encephalomyelitis and Chronic Fatigue Syndrome,” by Dr. Byron Hyde. I haven’t personally read this book because it’s not available on Kindle (the only format I can read), but Dr. Hyde has extensive experience in seeing both ME and CFS patients, and in finding each of the latter’s true “missed diagnosis.” It should be a terrific read, especially for CFS patients wondering what diagnoses are most likely to be behind their symptoms.
There are many, many more resources, but these give a good basic foundation for understanding ME as a distinct disease. Thank you for your interest in learning about this often unheard of, nearly always misunderstood disease. Please help spread the facts by sharing this site and any of the links above. Thank you!