Time for a personal update. First, though, I want to sincerely thank everyone who has taken the time and energy to read, comment on, and/or share my posts thus far. This blog has taken off far faster than I ever dreamed it would, and already I have met so many wonderful people! It feels so … Continue reading Our Most Recent Dilemma
One of the positives that has come out of having a chronic illness is the number of amazing people I've met through networking with other ill individuals. I've learned so many things from the sick community! One of these things is that people have different ways of facing up to the reality of being ill. … Continue reading Hope and Facing Reality
As someone currently receiving hospice care due solely to the effects of ME, it irks me when people claim ME is not a fatal disease. Many, many ME-related deaths have shown that, at the very least, this disease can be fatal. I've seen people throw around a statistic which claims the death rate for this … Continue reading Is ME fatal? A different perspective.
Just a quick note to the awesome people I've already met who read my blog: I'm still here! I have another post in the works, but a lot has been happening and I'm flaring too badly to finish it right now. I promise to do so as soon as I'm able! Thank you for being … Continue reading Still here…
As someone who struggles with severe, progressive ME, one of the issues I struggle with most is giving in to new lows as the illness progresses. Over the years, I've learned this illness is relentless. It will continue to worsen no matter what I do. Sure, I can speed up or slow down the progression … Continue reading Fear Of Giving In
Fatigue. It is hands down the one single word people most often associate with ME. But should it be? Is it even a defining feature? No! As with any other neurological illness, people with ME experience a wide range of severe symptoms. These include but are not limited to: severe Central Nervous System damage, brain … Continue reading Is ME Fatigue?
I mentioned in an earlier post that I currently receive hospice care. As a severe ME patient, I know how lucky that makes me. I know the vast majority of people who have this condition like I do are left stranded with no care at all. I've been there myself, and it's a terrible place. … Continue reading What Is Hospice, And How Does It Help?