"What terrifies me is that you can disappear because someone's telling the wrong story about you." The quote above is taken from the closing lines of Jennifer Brea's new documentary, "Unrest." The film purports to be about the neurological disease Myalgic Encephalomyelitis and the experiences of those diagnosed with it. Unfortunately, far from helping those … Continue reading Unrest – A Devastating Documentary On Myalgic Encephalomyelitis
Canary In A Coal Mine
Unrest – A Personal Perspective
Some of my more devoted readers and friends may know that I was contacted quite awhile ago by Jennifer Brea, the woman behind the recently released documentary "Unrest," about being in her film. If you haven't read my more general review of this film and how it harms the very people it claims to represent, … Continue reading Unrest – A Personal Perspective
Another Update
Dear Friends, Recently there have been a lot of questions in the community about what has happened to me and where I am with things. I am now very near the end of life, and writing posts has become next to impossible, but I wanted to try to get one more out. This post will … Continue reading Another Update
Documenting M.E. 