In my last several posts, I promised a more personal update was in the works. In fact, this update is far overdue, and I want to apologize for that.
"What terrifies me is that you can disappear because someone's telling the wrong story about you." The quote above is taken from the closing lines of Jennifer Brea's new documentary, "Unrest." The film purports to be about the neurological disease Myalgic Encephalomyelitis and the experiences of those diagnosed with it. Unfortunately, far from helping those … Continue reading Unrest – A Devastating Documentary On Myalgic Encephalomyelitis
Some of my more devoted readers and friends may know that I was contacted quite awhile ago by Jennifer Brea, the woman behind the recently released documentary "Unrest," about being in her film. If you haven't read my more general review of this film and how it harms the very people it claims to represent, … Continue reading Unrest – A Personal Perspective
(Note: The following is an excerpt from my longer post, "Pyrexic Disease (or, Why The Creation of SEID Should Concern Us All)," written soon after the release of the recent IOM report. That said, I felt the analogy/explanation below deserved to be in its own post, separate from the SEID/IOM debate, so that people interested … Continue reading ME vs CFS – What’s Up With The Name War?
Since the recent release of the Institue of Medicine's report recommending the creation of a disease called Systemic Exertion Intolerance Disease, there has been a lot of confusion over what exactly the report says, and whether it is a good thing for patients. Some are claiming the report itself is about something called "ME/CFS" and … Continue reading Pyrexic Disease (or, Why The Creation of SEID Should Concern Us All)
Heads up, folks! This is probably the most important post I will ever write. It's certainly one I feel very passionate about. It's also a bit daunting, because I really want to get it right, to write this post in such a way that people will understand the truth in what I'm saying and pass … Continue reading ME vs. CFS – They’re Not The Same!