Dear Friends, Recently there have been a lot of questions in the community about what has happened to me and where I am with things. I am now very near the end of life, and writing posts has become next to impossible, but I wanted to try to get one more out. This post will … Continue reading Another Update
dying
Final Stages
Dear Friends and Family, This is a post I've been putting off for quite awhile. But I no longer have the luxury of putting it off anymore - not if I want it to get written. My personal journey with ME is near its end. A long time ago, after months of deliberation, I made … Continue reading Final Stages
Big Changes
I'm going through some big changes here, and not necessarily good ones. My initial version of this post was looking quite different, but things haven't played out the way they were supposed to, and to be honest, I'm in a bit of a mess. Here's the deal: Medicare recently made some nasty changes. Because of … Continue reading Big Changes
Birthday Madness
This week was my birthday. I'm trying not to think about the time that's passed since my last birthday, since I've been home/bedbound the entire time. To be honest, I'm not exactly thrilled to be here for this event. Don't get me wrong - if I thought for a moment I could get better and … Continue reading Birthday Madness
Life Past Your Time
To live past your time is a terrible thing Confusion, frustration, and pain will it bring Separation will come from friends who are near Relationships lost with those who are dear Time will be wasted, hour by hour Days full of purpose, beyond your power Your body decays but your heart is still there Fighting … Continue reading Life Past Your Time
Our Most Recent Dilemma
Time for a personal update. First, though, I want to sincerely thank everyone who has taken the time and energy to read, comment on, and/or share my posts thus far. This blog has taken off far faster than I ever dreamed it would, and already I have met so many wonderful people! It feels so … Continue reading Our Most Recent Dilemma
Is ME fatal? A different perspective.
As someone currently receiving hospice care due solely to the effects of ME, it irks me when people claim ME is not a fatal disease. Many, many ME-related deaths have shown that, at the very least, this disease can be fatal. I've seen people throw around a statistic which claims the death rate for this … Continue reading Is ME fatal? A different perspective.
Fear Of Giving In
As someone who struggles with severe, progressive ME, one of the issues I struggle with most is giving in to new lows as the illness progresses. Over the years, I've learned this illness is relentless. It will continue to worsen no matter what I do. Sure, I can speed up or slow down the progression … Continue reading Fear Of Giving In
Documenting M.E. 